Behavioral Treatment to Improve Dietary Adherence and Weight Gain in Children with Cystic Fibrosis

Volume 4, Issue 10.

In this podcast we have guest author Lori Stark, PhD, ABPP, Professor of Pediatrics at the University of Cincinnati College of Medicine. Dr. Stark, discusses how to use “shaping” to encourage a child to eat a non-preferred food, describes the role of “attention” in maintaining behaviors incompatible with eating, and discusses the use of caloric goal-setting and dietary tracking applications to monitor treatment progress.

Highlights of the 27th Annual North American Cystic Fibrosis Conference

Special Edition 2014 – Steven Rowe.

In this special edition of eCysticFibrosis Review, Dr. Peter Mogayzel discusses data findings from Dr. Steven Rowe results of the G551D observational study presented at the 27th Annual North American Cystic Fibrosis Conference in Salt Lake City, Utah.

Highlights of the 27th Annual North American Cystic Fibrosis Conference

Special Edition 2014 – Scott Powers.

In this special edition of eCysticFibrosis Review, Dr. Peter Mogayzel discusses findings from Dr. Scott Powers clinical trial on Behavioral & Nutrition Treatment for Preschoolers With CF which he presented at the 27th Annual North American Cystic Fibrosis Conference in Salt Lake City, Utah.

Highlights of the 27th Annual North American Cystic Fibrosis Conference

Special Edition 2014 – Elizabeth Yen.

In this special edition of eCysticFibrosis Review, Dr. Peter Mogayzel discusses outcomes presented by Dr. Elizabeth during her presentation on Nutritional Status and Outcomes in Pediatrics CF presented at the 27th Annual North American Cystic Fibrosis Conference in Salt Lake City, Utah.

Highlights of the 27th Annual North American Cystic Fibrosis Conference

Special Edition 2014 – Kenneth Olivier.

In this special edition of eCystic Fibrosis review, Dr. Peter Mogayzel discusses highlights from Dr. Kenneth Olivier’s talk on Nontuberculosis Mycobacteria: Updates in CF presented at the 27th Annual North American Cystic Fibrosis Conference in Salt Lake City, Utah.

New Therapies in Cystic Fibrosis Directed Toward the Basic Defect

Volume 4, Issue 8.

In this podcast guest author Steven Rowe, MD, Associate Professor of Medicine from the University of Alabama at Birmingham, describes how CFTR modulator therapy fits into the clinical armamentarium of CF lung disease; identifies which patients are most appropriate for CF modulator treatment; and describes current research efforts and how to identify patients suitable for referral for consideration in CFTR modulator clinical trials.

P. aeruginosa Eradication

Volume 4, Issue 6.

In this podcast guest author Dr. Margaret Rosenfeld from the University of Washington School of Medicine, discusses the rationale for early Pseudomonas aeruginosa eradication, Identifies the inhaled and oral antibiotics that have been compared in clinical trials for early Pseudomonas eradication, and describes the potential adverse effects of early Pseudomonas eradication therapy.

Strategies for the Improvement of Nutrition Outcomes

Volume 4, Issue 4.

In this podcast guest author Amanda Radmer Leonard, Pediatric Nutrition Practitioner, of the Johns Hopkins Children’s Center, describes approaches to the treatment of low vitamin D levels in patients with cystic fibrosis, discuss the variability of fecal elastase result during the first year of life, and summarizes the importance of tailoring nutritional interventions to specific patient and family situations.

Adherence to Chronic Inhaled Therapies

Volume 4, Issue 2.

Nonadherence to any medical regimen is common particularly among adolescents and young adults, and cystic fibrosis (CF) is no exception. There are many barriers to following the complex daily regimen that CF management requires, and researchers and clinicians have not yet found the ideal approach for counseling and supporting patients to improve and maintain their level of adherence. In this podcast Dr. Kristin Riekert, of The Johns Hopkins Adherence Research Center discusses best practices for determining which clinic patients are nonadherent and Identifies risk factors for nonadherence.

Featured Cases: Emerging Pathogens in Cystic Fibrosis

Volume 3, Issue 12.

Case studies offer opportunity to differentiate the needs of each patient when managing respiratory infections. Dr. Elliott Dasenbrook will review the prevalence of important CF organisms over the last 10 years, the impact of respiratory tract MRSA on survival, the association between a virulent strain of P. aeruginosa that can spread among patients and lung transplant or death, as well as the impact of chronic non-tuberculous Mycobacterial lung disease on lung function.